Norah Lois Booth was born on January 7, 2015.

When she was just a mere 7 weeks old she was diagnosed with Biliary Atresia, a rare congenital liver disease in which there is not sufficient drainage of bile in her digestive system causing hyperbilirubinemia (severe jaundice) which can lead to death before the age of 2 years old.

This page is designed to give information on Biliary Atresia, Norah’s story of battling Biliary Atresia (BA) and updates on her health and where she is in the liver transplant process. We appreciate any and all prayers and supports we can get as we keep chugging along with this marathon of a disease.