July 7 was Norah’s 6 month birthday and also her first day on the liver transplant waiting list.

I got the call at approximately 4:45pm from the nurse coordinator, Greg, who notified us that Norah is officially “listed” and that she has a score of 20. They told us while we were in LA that the highest score they had ever seen was 40 and the lowest was in the negative numbers. We can’t see the list for ourselves due to protection of patient information according to HIPAA, but we know that she is somewhere “in the middle” of the list. I was told from here on out to always have my cell phone on, charged, and with me in case we get THE CALL for her gift of life. While we still have some hope that a living donor will be found, we also know it is a bit of a long shot considering how rigorous the evaluation is for living donor candidates. In the meantime, we will try to be as prepared as possible and pray that we won’t have to wait too long on the list for the perfect match for Norah to come through.